The Nebraska Regional Cystic Fibrosis (CF) Center is the only Cystic Fibrosis Foundation-accredited center in the region.
The center provides diagnosis and treatment for both inpatients and outpatients with pediatric cystic fibrosis utilizing a multidisciplinary approach to specialized care provided by pulmonologists, nutritionists, respiratory therapists, social workers, coordinators and research technologists. All staff, doctors, and caregivers have extensive training and experience with cystic fibrosis in children. When appropriate, endocrinologists; gastroenterologists; and ear, nose, and throat services are also consulted.
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that attacks the lungs and digestive system of about 30,000 children and adults in the United States annually. The condition is caused by a gene and its protein product that causes the body to produce very thick, sticky mucus that clogs the lungs and can lead to life-threatening lung infections. The mucus can also obstruct the pancreas and prevent natural enzymes from helping the body break down and absorb food.
The staff at Children’s has extensive training and experience in the treatment and management of cystic fibrosis. Since cystic fibrosis is a chronic illness, your child will need to be followed closely and monitored by our specially trained doctors throughout his or her lifetime.
Treatment for cystic fibrosis involves a customized multidisciplinary team approach. This may include antibiotics, inhaled medications, nutritional management, and social/psychological support. Our doctors and clinicians will work closely with you and your child to educate you about the disease and to develop a treatment plan that will allow your child to live as normal a life as possible. The center is also actively involved in research to find better treatments for cystic fibrosis. You may have the opportunity to participate in clinical studies if you choose.